ong-term illnesses, CFIDS and fibromyalgia require that you adopt a different role as a patient, one we call being a self-manager. With short-term illnesses, you often can rely on a doctor to provide a solution. But CFIDS and fibromyalgia are different. [...]
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I’m not normal, I’d think in my head, I realize I can take some meds and “do” an activity but that also means I have to take LOTS of pills,be kinda out of it and then I get to hurt for the activity the next few days. [...] My story….. one day that someone close will understand I HATE this…I don’t want pity…I don’t want anyone to [...] How do I explain this to you my family and friends? This is very difficult to do as my illness is “unseen.” So allow me to begin by thanking you for taking the time out of your day to spend some time with me and get to know me better. A person’s time is their most valuable asset and yours is appreciated [...] I had to write you to respond to the individual’s letter about the family member who has fibromyalgia who is burning him out with what sounds like a minute by minute commentary on their health. News alert – nobody wants to hear a minute by minute commentary of anyone’s health, be it fantastic “Oh I ran 15 miles an hour ago and I feel GREAT” or deplorable “I just took my morphine and am still in pain”. [...] By Rosalie Devonshire MSW, LCSW, Author Taking Charge of Fibromyalgia If you had been a healthy, active person and develop fibromyalgia, the symptoms can create havoc in your life. Your inability to engage in activities you once enjoyed can cause you to become frustrated, angry, worried, or depressed. Your inability to meet the needs of your children, spouse, job, or community may contribute to a sense of inadequacy and worthlessness. Your friends may start to distance themselves. Continue reading Taking Charge of Fibromyalgia A useful story about one persons way of communicating how hard life with Fibromyalgia and Chronic Fatigue can be, A must read for all care takers and significant others of patients with Fibro [...] |
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